BLOG
-
How Xickle® RBC-Plus Helps Prevent Cell Sickling [Infographic]
March 26, 2014 by AndreaCategory: Red blood Cell Health, Resources for Parents, Sickle Cell Disease Tags: sickle cell anemia, sickle cell disease, sickle cell disease resources, Xickle | Comments Off on How Xickle® RBC-Plus Helps Prevent Cell Sickling [Infographic]
-
Resources for Parents of Children with Sickle Cell Disease #SickleHope
December 13, 2013 by Eric Coles
There are so many resources available for parents with children of Sickle Cell Disease that can lead to a better understanding of the disease and to parents connecting with appropriate, available resources.
Having a child with a chronic disease can cause parents to have feelings of hopelessness and confusion. Especially since Sickle Cell Disease is a genetic trait, parents may feel responsible for their children's illness. Support groups ensure that parents receive the emotional and mental assistance that they need and the knowledge that they are not alone.The resource list is state by state and national.
State by State Resource Guide for Parent information and including Parent Support Groups from the CDC - National Resource Directory on Sickle Cell Disease
From the Official Journal of the Academy of Pediatrics - Newborn Screening Fact Sheets
North Carolina Department of Health Services - Sickle Cell Syndrome Program
American Academy of Pediatrics - Sickle Cell Disease Resource Kit
The Sickle Cell Clinical Program at The Children's Hospital of Philadelphia
Sickle Cell Disease Association of America
American Sickle Cell Anemia Association
The Student Athlete with the Sickle Cell Trait
Sickle Cell Kids
The Child with Sickle Cell Disease - A Teaching Manual from the Texas Department of HealthNational Heart, Blood, Lung Institute - What is Sickle Cell Anemia?
Category: Chronic Health Conditions in Children, Resources for Parents, Sickle Cell Disease Tags: children with sickle cell disease, resources for parents, sickle cell disease resources | Comments Off on Resources for Parents of Children with Sickle Cell Disease #SickleHope
