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  1. Your World Sickle Cell Day Bucket List

    May 26, 2015 by Andrea
    Photo: Flickr/scooterdmu via CC BY 2.0

    Photo: Flickr/scooterdmu via CC BY 2.0

     

    Juneteenth isn't the only thing we have to celebrate each year on June 19 -- it's also World Sickle Cell Day. Honoring this date, which commemorates the day back in 2008 on which the United Nations officially declared sickle cell disease as a public health concern, comes in many forms. Some people participate in awareness walks, some people take to social media, and others sell goods to raise funds for more research. While thinking about the many different ways people all over the world can observe World Sickle Cell Day this year, we came across this post by Sickle Cell 101, which provides some amazing ideas that are easy to get involved in. Check out some of our favorites below and then be sure to visit the full post for even more inspiration. 

    --Change your username on your social media accounts (i.e. Instagram, Facebook, Twitter, etc.) to “(Your name) fights Sickle Cell”. An example of a username on Instagram would be @cass_fights_sicklecell. If do not have Sickle Cell but would like to help raise awareness, you can substitute and think of a creative name so people can learn about Sickle Cell.

    --Make and post a video explaining what Sickle Cell is and how it affects you. Post this video of Sickle Cell on your Instagram account, Facebook page, YouTube etc,

    --Repost Sickle Cell facts you find on the internet or on social media platforms. If you have trouble finding Sickle Cell facts, check out Sickle Cell 101’s Facebook page and/or their Instagram account (@SickleCell101)

    --Wear your Sickle Cell gear wherever you go… To the store, to work, to school, anywhere! There is no better time to wear your Sickle Cell accessories and clothes.(Click here to get your Sickle Cell awareness jewelry.)

    --Get a group of your friends together and educate your friends about the disease. Many of them probably already know the basics and what you’ve told them, but allow a Q&A session after presenting your information. Allow them to ask any questions they want to better understand the disease.

    We love how simple, yet meaningful, each of these ideas is. Also, since sickle cell affects 1 out of every 500 African Americans, having a combination celebration of Juneteenth and World Sickle Cell Day would be perfect! At your cookout or parade, rock your sickle cell awareness shirts, decorate with sickle cell awareness balloons, screen a sickle cell movie or documentary, collect donations from family and friends at your celebration, and have an open dialogue while everyone is in the same place. 

    How do you plan to recognize World Sickle Cell Day this year?

     


  2. How Creativity Can Help Continue the Fight for Increased Sickle Cell Awareness

    April 6, 2015 by Andrea
    Notebook Photo: Markus Spiske / raumrot.com / CC-BY 2.0; Additions by Andrea Butler

    Notebook Photo: Markus Spiske / raumrot.com / CC-BY 2.0; Additions by Andrea Butler



    We've talked about how art and music therapy can benefit those living with sickle cell, and we've also brought you news of a feature film all about SCD. This week -- just one week out from Advocacy Day 2015 -- we're shining a light on two sickle cell warriors who are using their creative gifts to spread the word about SCD and contribute to educating others about the disease. As you prepare for Advocacy Day, watch the videos below and get hyped and ready to continue the fight for sickle cell awareness all around the globe. 

    Dr. La'Veda Wallace-Page (AKA Sickle Siren) has channeled her pain, motivation, and life lessons into the creation of her very own stage play, Crisis and Courage. Structured as a series of monologues (similar to the play, For Colored Girls by Ntozake Shange), this play shares Dr. Wallace-Page's experiences as a sickle cell soldier -- the struggling and the overcoming -- and features several performers. The play initially debuted last summer, but be sure to follow Dr. Wallace-Page on Facebook and Twitter to learn about upcoming performance dates, times, and venues. https://www.youtube.com/watch?v=1LIrk7bzXsk&feature=youtu.be&t=1m14s


    Jeremy R. Sheppard not only creates music (here's a snippet of a song he wrote inspired by his life with sickle cell), but last September, he also developed a short film about sickle cell called Super Sickler. In it, Jeremy portrays sickle cell as a couple of gangsters that come after him, imprisoning him in a dark basement, beating him up, and threatening to end his life right on the spot. Of course, Jeremy fights back and to demonstrate his struggle against the disease, Jeremy transforms himself (and his doctor) into a superhero and goes on the offense, seeking out the sickle cell gang, fighting them off, and winning. See the entire film below: https://www.youtube.com/watch?v=xYh1TqXKqkc


  3. How to Celebrate World Sickle Cell Day 2014

    June 5, 2014 by Andrea

    worldsicklecellday

    Since 2008, when the United Nations gathered together at their General Assembly and officially declared sickle-cell disease a public health issue, World Sickle Cell Day has been celebrated annually around the globe on June 19. 

    Besides checking your local events scene to discover what activities are going on in your community, you can also take to social media and get in on the campaign to spread awareness. Sickle the Cycle has launched the "Paint the Internet Red Campaign: Show Your Strength" specifically for this year's World Sickle Cell Day, and it's super simple to join in and do at least one of the following things: 

    1) Write a blog post. You don't have to be a writer by trade to be able to reach people with your words and experiences. Publish a post about you or your family's personal struggles and successes with sickle cell or share facts about the disease to help raise awareness. You can even opt to post encouraging, inspirational quotes in picture form. Don't have a blog? It's easy to make one -- even for free! Visit WordPress, Typepad, Blogger or other platform to discover which one is best for you.

    2) Post to Twitter, Facebook, Tumblr, and/or Instagram.
    If the concept of blogging seems like too much pressure, keep your message short by posting on one of these platforms. Post facts about the disease, repost links to relevent blogs and websites that share information about SCD, or share photos of other sickle cell warriors to build morale and support. 

    3) Start a Booster.com campaign. Raise awareness year-round by creating custom T-shirts for your cause. You can choose to upload your own design to the site, or you can use the artwork and font options that Booster.com provides right on its platform. It's easy to do: Simply choose the type of shirt you'd like, design the shirt to support sickle cell awareness, set your price, decide on the length of your campaign, and you're done. Bonus: Running your fundraiser is free! To make sure your booster is a success, spread the word on social media to get people to buy and/or donate money.


    How will you be celebrating World Sickle Cell Day this year? Comment below! 

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