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  1. How to Turn the March for Science’s Actions into Sickle Cell Activism

    April 24, 2017 by Andrea
    march for science

    Poster design: marchforscience.com


    The March for Science -- which saw protesters all over the world stand up against the Trump administration's "alternative facts"-driven outlook on the discipline -- took place on Earth Day (Saturday, April 22, 2017). And while the majority of the march's focus seemed to center on climate change, the Flint water crisis, and wildlife protection, scientific research of all kinds is championed by the marchers, supporters, and activists.

    That includes research and advancements for sickle cell disease.

    This new week post-march is one of continued action and provides the perfect opportunity to further awareness of SCD, starting with today (Monday, April 24), in which the theme is "Science Discovers." The march's website provides various ideas on how to participate in this first day of action: promote science outreach, plan a science game night, and get others involved. Building upon the March for Science's suggestions, we've got a few thoughts on how you can tailor your first day of action -- and the rest of the week's -- to be sickle cell-specific:

    1. Plan an informal teach-in (or series of teach-ins) at a local school, church, or community organization to be held in the near future. Partner with a nearby chapter of the SCDAA or other similar group to bring in experts and speakers.

    2. Suggest that your book club choose a sickle cell-themed book for your next selection, and come to the meeting ready to discuss what you've all learned, and brainstorm ways you can support the community.

    3. Create your own SCD-themed card game or board game with family and friends. Then, host a game night to actually play your newest masterpiece. It's a fun way to educate yourself and others you know about sickle cell. Check out this list of science-related games for inspiration on developing your own.

    As you work on those ideas and begin the planning process, keep the other days of action in mind, too, and implement more activities and programs so that your year is full of activism and awareness.

  2. 7 Times Instagram Kept It Real About #SickleCellProblems

    June 1, 2015 by Andrea

    We all know that sickle cell disease is in desperate need of widespread awareness. As World Sickle Cell Day approaches, we wanted to take some time out to recognize the warriors and bring to light how many of them feel on a regular basis -- and what better way to do that than to hear from the warriors themselves through the power of social media?


    When this is what you mean by "rollin' with your crew":




    When your sickle cell pain is past the point of those everyday pills:



    When people tell you that you don't look sick:




     When you feel a sickle cell crisis about to happen:




    When you realize it's the little things in life that make you happy:




    When the pain comes out of nowhere:



    And last, but not least, when you remember that you're a warrior and SCD messed with the wrong one:




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