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3 STEPS TO RAISING AWARENESS AND PREVENTING OCCURRENCES OF SILENT STROKE

May 4, 2015 by Andrea

blackchild

Being the parent of a child with sickle cell -- or having the disease yourself -- you understand the risks of stroke. According to bloodjournal.org, 24 percent of people with sickle cell disease will have a stroke before their 45th birthday. And the chance of recurrence? Sixty-seven percent. Of course, recognizing the symptoms of stroke and taking immediate action to get treatment is a patient's best chance for recovery and preventing too much damage, but what about those silent strokes? Oftentimes, they can occur with no signs at all.

First, let's look at what causes these types of strokes in kids. As reported by strokecenter.org, silent strokes can develop when sickled cells block large arteries going toward the brain. Over time, these silent strokes can significantly and permanently affect a child's ability to remember things, focus on tasks, and move around easily. "It's estimated that 17 percent of SCD children under the age of 14 have silent strokes and the rate increases to 23 percent by the age of 18," states strokecenter.org. Because of the lack of outward signs, it's nearly impossible to prevent the onset of an initial silent stroke; however, early detection with brain scans, regular blood transfusions, and supplements such as Xickle (that can help prevent cells from sickling in the first place), may help cut the risk of repeated strokes.

Raising awareness for silent stroke is also of the utmost importance. Here are three ways that you can help get the word out:

1. Be Active on Social Media
Blog about the causes of silent strokes or share the story of someone you know who's been affected by silent stroke. On social media sites, such as Twitter and Facebook, post infographics on the topic, as well as links to resources -- the National Stroke Association makes all of this easy with their online tools and ideas!

2. Plan an Event
Whether you'd like to host a charity poker game, a 5K walk/run, or a free screening, the National Stroke Association can help with that, too. Visit their website for information on how to register your event with them, plan, market, and recruit volunteers.

3. Speak on It
Make yourself available to give talks at schools, churches, nursing homes, and anywhere else in your community. Again, the National Stroke Association is available to help with it's pre-made presentations and discussion guides.


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