Like many of you, we're ringing in the new year with a little bit of reflection. We reached many milestones in 2017, including entering the second phase of our clinical trial and being recognized as a "promising new drug for the treatment of sickle cell disease." ...
Resources
Deer Blood Research May Lead to Advancements in Sickle Cell Treatment
Some fascinating news broke last week: After 170 years of wondering why the red blood cells of deer sickle, scientists have finally discovered what causes the distortion. As reported in Science magazine, researchers compared deer blood in species that do have...
How Writing Poetry Can be Therapeutic for Sickle Cell Warriors
Sometimes, there are things you want to say that others may not be willing -- or ready -- to hear. Whether that's because they can't handle the emotion of the moment, are too busy, or something else is preventing them from truly being present with you, you'll need to...
This Choir’s Cover of “Rise Up” Encourages People to Donate Blood for Sickle Cell Warriors
The English-Welsh health organization, NHS Blood and Transplant (NHSBT), has partnered with the British music awards show, MOBO, for the second year in a row to push for an increase in blood donations. Understanding that diversity in the blood supply is extremely...
Celebrate National Cookie Day with These SCD-Related Goodies
It's no wonder National Cookie Day is in December, what with so many glorious varieties to bake for the holidays. But, you don't have to stick with the typical sugar cookie cut-outs -- you can infuse a little sickle cell awareness into your treats. Get ready to pull...
Online Community Just for Sickle Cell Warriors Launching Soon
A new site aimed at providing not only sickle cell-related news and resources, but also a means of safely connecting to others in an online community is launching next month. The brainchild of parent company RareLife Solutions, oneSCDvoice is "an educational platform...
The McCourty Twins are Coming Through with a New SCD Fundraiser
NFL stars Devin and Jason McCourty are always representing the SCD cause through their Tackle Sickle Cell campaign, which, according to their website "aims to educate the public, increase blood donations, and raise money and awareness" for this inherited disorder....
Your Favorite Children’s Author Just Came Out with a Book About Sickle Cell
Children love stories, and stories are one of the best ways to teach kids things they need to know in a way that's relatable, fun, and interesting to them. One of those things is sickle cell. Fortunately, more books are starting to be published for kids to help them...
How One Medical Team is Working Prevent Strokes in Kids with Sickle Cell
With a 24 percent chance of having a stroke before the age of 45 and a 67 percent chance of recurrence, it's easy to see why a team of doctors at the Medical University of South Carolina (MUSC) have made stroke prevention in sickle cell warriors their priority. Just...
Twitter Praises Health Service for its Swift Response to Racist Tweet About Sickle Cell Warriors
It may be 2017, but we're all well aware that racism has never ceased to exist, not only in the U.S. but also in other parts of the world. In our modern age, bigotry is often spouted on social media where it can be seen by millions yet still disseminated under a veil...
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