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3 Ways to Get More Involved in the Sickle Cell Community Right Now

September 1, 2015 by Andrea

Photo: CreateHER Stock

As a sickle cell supporter -- or warrior, yourself -- you're always looking for new ways to get involved with the SCD community. Even if there aren't many (or any) support groups or other services where you live, you can still find ways to be active in the global sickle cell society.

Here are three ideas to kick off sickle cell awareness month and increase your connection to this community at large:

1. Scour social media. If you haven't already, create a Twitter, Facebook, Instagram, or other social media account. Social media is where thousands of sickle cell warriors gather at all times of the day to meet each other, share their stories, and lend support.

2. Binge on past episodes of WDC Radio. Each episode of WDC Radio features a new discussion on sickle cell-related topics, hosted by advocate, Farron Dozier, and new episodes air every Saturday at 4 p.m. PT. According to its YouTube description, "The goal of WDC Radio is to spread awareness of sickle cell disease and to better inform sickle cell patients, families, and doctors on how to best manage the disease." After watching, be sure to donate to the cause, as well, so this show can continue to do its good work.

3. Start a blog. Or a vlog (video blog). Sharing your own journey living with sickle cell disease -- or caring for someone who does -- is another great way to connect with fellow warriors and caregivers. Consider discussions on how you deal with a pain crisis, how you celebrate the good days, how you stay positive, and other topics that the rest of the community can relate to. 

Getting move involved with the SCD community will not only be therapeutic for you, but can also be a blessing to others. Which idea will you tackle first? 

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