Hurricane Harvey battered Texas, especially the Houston area, for six straight days, raining down trillions of gallons of water, killing at least 50, and leaving thousands in need of rescuing -- including a 14-year-old girl having a full-blown sickle cell crisis....
A London-based performance group is using entertainment as a way to increase visibility of SCD for Sickle Cell Awareness Month with a show called "Tough Blood." Infusing "street dance, projection, and sound design," this multimedia program will highlight real stories...
We've all been warned never to stare directly in to the sun -- even during a solar eclipse like the one that just passed over the U.S. a few days ago. Doing so could lead to retina damage and permanent vision loss. For sickle cell warriors, though, protecting their...
[*NOTE: Each of these fundraisers is hosted on Booster.com (a division of Custom Ink), but all funds will go to the sickle cell group that is organizing the fundraiser. Also, in case you're wondering, the models seen in the mockups are Booster.com's default --...
The floods of calls, e-mails, tweets, and postcards from citizens to their representatives once again saved the Affordable Care Act (ACA) from being repealed and replaced last month. This means that, for now, among other things, the law will still require insurance...
We all know how sickle cell works. When red blood cells (RBCs) are introduced into low oxygen conditions, those cells become misshapen -- the lack of oxygen causes the cells to attach to each other and form polymer fibers -- and clump together. Travel through the...
Don't get us wrong -- we're all about meditation and self-hypnosis as a coping method for those less-severe moments of sickle cell pain. They're backed by research and work really well for some people. The key word there, though, is "some." To be honest, many others...
Regular exercise is good for everyone -- it keeps your heart healthy, your body in shape, and it can boost your overall mood. If you're living with sickle cell, though, it can be difficult to determine what types of fitness routines will be beneficial without sending...
After more than 20 years of waiting, a new drug for the treatment of sickle cell was finally approved by the FDA on Friday (July 7, 2017), bringing the total to two (the other being Hydroxyurea). Developed by Emmaus Medical, the new drug Endari uses the amino acid...
After Prodigy's passing late last month, celebrities and fans alike flocked to social media to express condolences and shock at the news. Many people even inquired as to what sickle cell was and how someone got it -- another clear sign that this disease does not even...
Last Tuesday (June 20), eerily enough just one day after World Sickle Cell Day, Prodigy of the famous hip-hop duo Mobb Deep made his transition. Only 42 years old, the rapper was on tour in Las Vegas where he died from complications of sickle cell disease -- a...
World Sickle Cell Day (and also Juneteenth) is here again, and like every year, people come up with various ways of celebrating and raising awareness. Some wear red, some host workshops, and most get active on social media -- sharing how they've chosen to observe the...
Going away to college can already be stressful enough -- new place, new people, new classes -- but managing your sickle cell while you're there doesn't have to be. With the tips below, living with SCD away from home won't be as complicated as you may have thought: ASK...
Whether it's at school recess or with friends in the neighborhood on weekends or during summer break, there's no denying that kids love to play -- and play hard. From intense games of tag to spirited jaunts on the jungle gym, kids can get into vigorous exercise...
Monthly periods can be painful enough for women and girls with completely normal red blood cells and hemoglobin levels. Throw sickle cell in the mix and typical cramps can become a full-blown crisis -- every single time. Research shows that menstruation can directly...
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