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  1. How to Improve Treatment for Patients with Sickle Cell Disease

    September 25, 2014 by Andrea

    To improve patient treatment, we must first improve a patient’s perception of who’s giving the treatment. Here's how.

  2. 21 Inspiring Quotes to Reignite the Sickle Cell WARRIOR Inside of You

    September 18, 2014 by Andrea


    Whether you personally live with sickle-cell disease or you're a caregiver to someone who does, there's no doubt that it takes a lot of perseverance for you to push through the tough times. 

    To celebrate your warrior status, we're sharing some of our favorite quotes on overcoming, building courage, and having overall tenacity. 

    1. "Being a survivor doesn't mean being strong - it's telling people when you need a meal or a ride, company, whatever. It's paying attention to heart wisdom, feelings, not living a role, but having a unique, authentic life, having something to contribute, finding time to love and laugh. All these things are qualities of survivors." --Bernie Siegel 

    2. "You recognize a survivor when you see one. You recognize a fighter when you see one." --Elizabeth Edwards 

    3. "Life isn't perfect. When you get a knock, you have to get up, dust yourself down and get on with it." --Patsy Kensit 

    4. "What makes people resilient is the ability to find humour and irony in situations that would otherwise overpower you."--Amy Tan 

    5. "One who gains strength by overcoming obstacles possesses the only strength which can overcome adversity." --Albert Schweitzer 

    6. "Just as we develop our physical muscles through overcoming opposition - such as lifting weights - we develop our character muscles by overcoming challenges and adversity." --Stephen Covey 

    7. "Acceptance of what has happened is the first step to overcoming the consequences of any misfortune." --William James 

    8. "When faced with a challenge, happy families, like happy people, just add a new chapter to their life story that shows them overcoming the hardship."--Bruce Feiler 

    9. "Although the world is full of suffering, it is also full of the overcoming of it." --Helen Keller 

    10. “If you are faced with a mountain, you have several options. You can climb it and cross to the other side. You can go around it. You can dig under it. You can fly over it. You can blow it up. You can ignore it and pretend it’s not there. You can turn around and go back the way you came. Or you can stay on the mountain and make it your home.” --Vera Nazarian 

    11. “The future will present insurmountable problems- only when we consider them insurmountable." --Thomas S. Monson 

    12. “Nobody looks good in their darkest hour. But it's those hours that make us what we are. We stand strong, or we cower. We emerge victorious, tempered by our trials, or fractured by a permanent damning fault line.” --Karen Marie Moning 

    13. “The greater the obstacle, the more glory in overcoming it.” --Molière 

    14. “Those who don't know how to suffer are the worst off. There are times when the only correct thing we can do is to bear out troubles until a better day.” --Deng Ming-Dao 

    15. “I am more than my scars.” --Andrew Davidson 

    16. “If you expect life to be easy, challenges will seem difficult. If you accept that challenges may occur, life will be easier.” --Rob Liano 

    17. “There is no chance, no fate, no destiny that can circumvent, or hinder, or control the firm resolve of a determined soul.” --Hyrum Smith 

    18. “Thriving. That's fighting... Surviving is barely getting by.” --Jillian Michaels 

    19. “Confidence, courage and determined spirit are vital for surviving hard times.” --Lailah Gifty Akita 

    20. “Armed with my positive attitude and inherent stubborn nature, I keep my mind focused and my life moving forward. I stop to rest, pout and even cry sometimes, but always, I get back up. Life is giving me this challenge and I will plow through it, out of breath with my heart racing if I have to.” --Amy B. Scher 

    21. “Most people live in fear of some terrible event changing their lives, the death of a loved one or a serious illness. For the chronically ill, this terrible event has already happened, and we have been let in on an amazing secret: You survive. You adapt, and your life changes, but in the end you go on, with whatever compromises you have been forced to make, whatever losses you have been forced to endure. You learn to balance your fears with the simple truth that you must go on living.” --Jamie Weisman 

    What is your favorite quote on being a warrior? Share them in the comments below!

  3. Dear SCD Community: We’ve Got Much Work to Do

    September 11, 2014 by Andrea

    It’s been more than 100 years since the discovery of sickle cell disease; however, it is still one of the most under-supported and under-researched diseases. Here's how you can help change that.

  4. How You Can Show Your Support This Sickle Cell Awareness Month

    September 2, 2014 by Andrea


    September is Sickle Cell Awareness Month -- and we've got a list of the best ways you can show your support! 

    1) Go Viral. How much did you really know about ALS before that ice bucket challenge hit every corner of the Internet last month? Let's learn from that movement and really get the Bold Lips for Sickle Cell challenge trending to raise awareness of SCD. Not only will it bring sickle cell to the forefront and prompt people to do a little research to learn more about what it is, but it will also lead people who may not otherwise be linked to #TeamSickleCell to join the cause and make donations for much-needed research.

    2) Bleed Red. We mean this literally and figuratively. Get out there and show off your support by sportin' something red in your wardrobe every day this month. Also, make it a point to donate blood and/or platelets at your local American Red Cross location; or, host a blood drive in conjunction with the Red Cross yourself! 

    3) Become a Sickle Cell Trotter. According to the National Urban League, The Children's National Medical Center's sickle cell program is one of our nations busiest. It treats more than 1,400 patients every year and sends dozens of kids  with SCD to camp each summer. To fund the campers, money is raised through the Race for Every Child event, hosted each year by The Sickle Cell Trotters. This year's race will be held on September 13 at Freedom Plaza in downtown Washington, D.C. Join their team and/or make a donation today! 

    4) Paint the Town (Red). Ok, not really, but definitely print out several copies of this poster -- courtesy of The William E. Proudford Sickle Cell Fund, Inc. -- and post them up all over your community. Hang them at your workplace, your children's schools, churches, anywhere and everywhere that will have them!

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